Tuesday, December 23, 2014



Five years is a bench mark for cancer survivors.  If you go five years without the big "C" rearing its ugly head, you are supposed to be "in the clear".  You will always have cancer, as we all do, in some form or another.  It's just that the body has found its own way of killing the genetic mutants.

Every survivor breathes considerably easier when they reach five year, all clear ...

I am stunned that I have not visited this site in almost three whole years let alone written anything.

Where had I been?  What went on?  Have I reached my five year all clear from grief?

It is hard to realize that so much time has gone by.  So many changes.  So much growing up within our little family.

My father, Tolek, finally made the big move to Vero Beach from his sumptuous apartment in Aventura, Miami in August on 2011 at the ripe age of nearly 85.  It took many years of intense persuasion but we finally got him a great condo a mere six - not five or seven - minutes away from our home.

My father and I struggled my whole life with our relationship.  As an alcoholic and survivor of not only the holocaust but also as a fighter for the Promised Land - a Jewish State, he never really recovered from his early teenage traumas, and coped as best he could. Alcohol. 

Tremendously intelligent, he was a loner and often lived a fantasy life which included having business cards printed up that said "Dr. Teofil Cadmon".  When I asked him what the heck he was doing handing that out, he told me that he had gone to enough courses through his work with Western Electric/Bell labs/ATT to afford him a PhD so he gave it to himself!

Although his health was declining, he was still very independent, driving, shopping and cooking for himself.  Living so close to us, one of us saw him daily and we really felt like a little family for the first time.  We developed a routine and he was always up for an outing anywhere.  He was particularly happy if it included a meal for which he would always gladly pay. 

As a newbie resident of  Vero Beach, we went about the geriatric task of finding all new doctors and made regular visits to each one of them.  Slowly, Tolek began to let go and trusted me with his medical information and speaking to the doctors.  He believed he was as tall as he was when he was 50 even though he was at least two inches shorter than me and argued it at the offices!  He also believed himself to be at least thirty pounds lighter.  Many times, I would  excuse myself when he was in the examining room to go and get a quick word with the attending nurse or doctor to give them the real low down ...

In August of 2012, he was hospitalized with heart failure.  He had arbitrarily decided to stop taking one of his medications, which led to massive fluid build up in his chest.

He was discharged after three days but it was the beginning of the end.  

I have to give huge props to the staff of nurses from the VNA of Vero Beach.  Each and every single one of them who came home to visit and care for him was beyond caring, loving and so very kind.  After a second visit to the ER, he asked me to sit down when I was finally allowed in his room.  He wanted to speak and he did not want me to interrupt, a bad habit which drove him bananas.

He had been alone in the room for over forty five minutes and had clearly come face to face with his own mortality.  He apologized to me for being a terrible father.  In fact, he said that it was remarkable I turned out as well as I did considering how dreadfully I had been parented on both sides of the Atlantic.  He held my hand, thanked me and told me he did not deserve as kind and caring a daughter as I was.

Although he was coasting, hospice came in for long term assistance.  I was supposed to go to London but cancelled my flight in the last minute as he was beginning to fall from a weak heart.  

I moved in.  We were the unlikeliest of room mates.  After fifty years, we were living together again.
On October 28th, 2012, Kaelin, Corey, Daniel and I along with two dear friends, celebrated Daddy's 85th birthday.  That made him the oldest member of his family to ever reach that age and not die an unnatural, early death.

On Halloween morning, I went into his room.  He was cold but so was the room.  He was peacefully sleeping, the oxygen machine pumping away.  I went to call my mother and while I was on the phone, Daniel came over to visit.  A few minutes later, he came into my room and just held out his hand.

My dad had passed away as everyone should.  Peacefully, happily, safely in his own bed, in his own home.  In his sleep.  

Those last three weeks were the best time we ever spent together.  In dire circumstances, in the shadow of death, he gave me the greatest gift of all - he let me know that I really was loved and appreciated by him and his apology erased a lifetime of painful memories.

Kaelin stayed with me at Daddy's and for some reason, I did not return home but rather remained in his condo until December.  I felt his presence all the time and it was comforting.

Two days after his passing, I made reservations to come to London to spend Christmas and New Year with my mother and a very ailing Peter.  I wanted to spend the holidays with family, as it should be.

Upon my return to the States, I also returned home, much to the disappointment of my boys who got quite used to having the house to themselves!  I really needed to reclaim my territory and made sure I marked all corners.

My dad's death was more bearable than Vic's as it came after a long, long life well lived.  But I realized that my father had also become my buddy, my go-to friend when I needed company or an outing.

I missed my pal and again, I sort of disappeared into my own world, my room, forsaking the gym, people.  My life, which had taken on some meaning whilst looking after Tolek, was again rudderless.

It was not but a few months later that I ended up in London as Peter's diabetes affected his right foot, culminating in the leg's amputation last year, at the age of 91.

I spend six weeks in London that summer to help.  I have been returning every two-three months since.

We all returned last year again for Christmas and New Year, flying on Christmas Eve and leaving on New Year's Day.

A new tradition.

It is now December 2014.  I am in London again, spending my first Christmas without my children, who will be arriving next week.

I have learned the importance of compassion, kindness and patience.  I have learned that the smallest acts of kindness can make a difference in someone's life.  I have learned not to have expectations of people or things as it usually ends in disappointment.  Being expectation-free with very liberating.

I have rekindled old friendships and firmly established and cherished the precious ones I have.  I am so grateful to those people who have stood by me and just loved me, unconditionally through these past years.

What will happen with my mother when she loses her partner of 29 years?  It is my hope that she will pick up her life and continue with her causes, which still excite and fuel her.  It is my hope that my children will get to experience the Lili that I used to know, full of life, laughter and song, a happy woman, far from the burned out caregiver that she has become.  It is my hope that she and I have a few more years together, that we can enjoy life and that we can still share some journeys - together. Just the two of us.  




RIP  
Teofil Josef Angstreich-Cadmon
aka Tolek
October 28, 1925 - October 31, 2012






Monday, January 23, 2012

today's facebook posting ...

"The reality is that it is 2 yrs 3 mos ... I still have not opened all the condolence cards & letters as it hurts too much ... I still have clothes in the closet that I just hold & smell ... how does one mend a very broken heart? Thank goodness breathing is a reflex".

End of posting.

Listening to Steely Dan on Spotify. It's been a while. It still works upon me as a musical balsam.

So, yes, it is still very much about the grief. I gave up several dedicated years of anti-depressants & anti-anxiety meds just in time for the holidays. Timing sucked but all my reading has made the distinction between grief and depression very, very clear. Grief cannot be treated with anti-ds.

If that was the case, why put my body through all the additional stress of processing unnecessary drugs?

Accupuncture has been working very nicely for my migraines. They are now less the norm than they were, a predictable and unwanted, painful presence just the turn of my head away.

Jon has been working on accupuncture detox points as well. Perhaps they are helping. I certainly did not go into full blown withdrawals, which was anticipated. Far from it, much to my doctor's great surprise. I will give 50% credit to Jon's healing needles & 50% to the power of my will.

Or won't. As in "I won't have a problem", "I won't give in".

It is hard enough to experience the death of a loved one, a spouse, but painful issues like single parenthood, financial insecurity, isolation, all becomes dominant players in the grieving process.

I know they are with me ...

Something about Vic's passing has overly sensitized me to people's pain & suffering, particularly the illness of cancer & all that it entails ...

Reading that Joe Paterno's family were making a decision about his ventilator threw me into a mini breakdown. It reminded me so vividly that my last decision made on Vic's behalf was not to put him on a ventilator as I was advised that once on it, he would never come off.

So to have him hooked up to a breathing machine, to feed him through a tube in his stomach ... not an option he would have wanted anymore as the quality of his life would have been completely compromised & he would have been helpless & dependent, two things that were unacceptable.

I miss him ...

Tuesday, January 17, 2012

Moving out






For the best part of the past two years, I spent my home time in my room with ventures into the kitchen for sustenance & into the den to keep the bills paid.

Actually, that has since changed as I finally discovered online banking! Now the den really serves as the custodian of the family paper trail, the bane of my organizational existence.

When Vic died, I made a couple of very subtle changes to the bedroom, a place where so much time was spent during his illness ... the changes included emptying out his bedside table drawers, moving my "stuff" over to his drawers in the bathroom, strange things like that. I had given Shay & Angie a lot of his clothing immediately upon his death so I took over more closet space even though there remains a number of Vic's items that I cannot touch, move, look at still. I want them there, I just want them there.






My room has served as my womb room, the place I feel most connected, most protected, most safe, most detached from the world.

I have everything I personally need within a few feet of my bed, which serves as my hq. Comfortable beyond belief, totally inspired by the incredibly luxurious bedding in Miraval, my room is often referred to as my own hotel suite.

My room has nursed & nurtured all my emotions these past years have evoked. My billowy pillows are piled high, downy & soft. I have buried my face in them, the sheets over my head, more times that I care to admit, let alone share.

I have candles of all types everywhere, mainly inside an assortment of crystals, salt lights, etc. I have a lifetime of photos in multiple photo frames & I like to look at them.

Some people tell me I should not have them around. That's it is not good for me to keep looking at the past.

But I like it. It gives me great comfort. It reminds me of just how fleeting life is & how many wonderful moment we all shared.

Our living room is the central point of our house. A large, high ceiling, you walk through it to get to all rooms. It's a fabulous room, focal point being the fireplace that we all love.




But it is a room that I rarely frequent. It is the place where the Xbox was played, where football games and "Hillbilly Fishing" is watched. It is not a room that I use or have ever used, to be frank.

The only time I really come out of my room is to enjoy the fire but that was always quite short lived. For some reason, I always liked it most when everyone was sleeping & it was just me, the sound of the wood charring & the smell of oak burning.

Here it is winter again and the fire has been roaring away.

There have been small, almost imperceptible changes that have been insinuating themselves into my life.

One of them has been a very conscious effort on my part to spend more time in the living room, in the center of my home as opposed to sequestered in my "suite".

Those friends who come over all "get" why we always end up in my room. It has a really, really good, soothing vibe.

However, the seguaying into the living room is quite symbolic for me.

It represents a part of me that is getting ready to come back into the world ... it is a very slow process for me.

I have finally made the distinction between being depressed and the state of grief.

I am very jealous of those people for whom the grief process was a one, two, three event. I am more curious than envious about those people who became widowed who are right there, wham bam, back in the game.

I am questioning as to when I go from being "widowed" to being "single" ... being widowed still makes me feel connected to the relationship, as in we didn't want it to end. Being single seems overwhelming to me as I really never expected I would be that again. Even as we learned the true nature of Vic's illness ... death was not an option for him & we operated from that mind set ALL THE TIME.

I am thinking that the word "solo" does not present me with such angst, like I am "out there" ...

So there it is.

No rush. No pressure. No hurry.

And ...

Moving out of the bedroom into the living room.

Moving out of widowed into solo thinking.

From my heart to G-d's ears ...

Monday, January 2, 2012

Le roi est mort ...

Vive le roi. "Le roi" being the old.

"The (olde) year is dead. Long live the year".

I gave up on resolutions many lifetimes ago. They just set me up for failure as I simply put too ridiculously much on myself.

Now, decades later, I am happy to say that I have simply resolved to keep moving forward.

That's it. Just keep moving onwards.





The past couple of months, although at times
rocky, have all brought me to what I am perceiving as a new state. A new stage of my life.

One of my favorite Van Morrison songs ended with the haunting line, "the best is yet to come".

May it be so.

Saturday, December 31, 2011

Standing in a store ...

while my dad was sitting on a bench outside, a song which I have heard so many times before began to play on the radio. Suddenly the lyrics just jumped out at me. Not a huge fan of Celine Dion but I swear, SWEAR, this was directed right to me.

I have been fumbling for the right words to describe the place Vic had in my life, what he meant to me, how I felt when I was with him ... our relationship had MORE than it's fair and unfair share of ups and downs. I am not waxing lyrical on a life of perfect bliss.




Not at all. There are not many people whose relationship went from the alpha to the omega of life ... million dollar lifestyle to crushing bankruptcy, repleven, repos, eviction, and the list keeps going.

However, through all of it, Vic did lift me up, he did give me hope (even through his illness) and he told me every single day that we were together that I was the highlight of his life ...

I am working so very hard to move on. I am not stuck in wishing him back - I am not that far gone. I just wish that I could be happy as he would have wished.

I was watching one of my/our favorite movies, "Something's gotta give.". Diane Keaton, mid-fifties, divorced ergo "single" and her sister makes the following remark:

"A man in his fifties who is (still) single, is called "elusive", "hard to get", a "catch". A single woman in the same demographic is about as fucked as it gets".

Oy vey.

Very encouraging!

Anyway, onward into 2012 I go, the past slipping gently into precious memories with a hope for the future.

"For all those times you stood by me
For all the truth that you made me see
For all the joy you brought to my life
For all the wrong that you made right
For every dream you made come true
For all the love I found in you
I'll be forever thankful baby
You're the one who held me up
And never let me fall
You're the one who saw me through, through it all

You were my strength when I was weak
You were my voice when I couldn't speak
You were my eyes when I couldn't see
You saw the best there was in me
Lifted me up when I couldn't reach
You gave me faith 'cause you believed
I'm everything I am
Because you loved me

You gave me wings and made me fly
You touched my hand I could touch the sky
I lost my faith, you gave it back to me
You said no star was out of reach
You stood by me and I stood tall
I had your love I had it all
I'm grateful for each day you gave me
Maybe I don't know that much
But I know this much is true
I was blessed because I was loved by you

You were my strength when I was weak
You were my voice when I couldn't speak
You were my eyes when I couldn't see
You saw the best there was in me
Lifted me up when I couldn't reach
You gave me faith 'cause you believed
I'm everything I am
Because you loved me

You were always there for me
The tender wind that carried me
The light in the dark shining your love into my life
You've been my inspiration
Through the lies you were the truth
My world is a better place because of you

You were my strength when I was weak
You were my voice when I couldn't speak
You were my eyes when I couldn't see
You saw the best there was in me
Lifted me up when I couldn't reach
You gave me faith 'cause you believed
I'm everything I am
Because you loved me

You were my strength when I was weak
You were my voice when I couldn't speak
You were my eyes when I couldn't see
You saw the best there was in me
Lifted me up when I couldn't reach
You gave me faith 'cause you believed
I'm everything I am
Because you loved me

I'm everything I am
Because you loved me."

Sunday, December 18, 2011

On shopping & the real reason for the season ...


I'm done! Hooray!

This year, I made it easy.

"Tell me 3 (reasonable) things that you want. I will take it from there."

Whoop! Happy Chanukah, Merry Christmas, Happy Kwanza!!!"

This year, I finally learned. I shopped smarter. I let my fingers do the clicking. It was good. Now it's up to the assorted shipping companies to deliver ... holla!

Always at the back of my mind I remind myself that it is NOT about the presents, the knocking yourself out figuring out how to top last year's gifts, fighting the crowds, killing yourself.

To me, what this time of the years has a simple meaning ... it's about family, a time of gratitude, a time to reach out to others less fortunate.

Kaelin has a part time job as a hostess at a nice, beachside restaurant steak house. She came home the other day, sad. The pecking order of payment is such that the busboys get paid last. Apparently, one of them is very young with a 3 year old son. Times being tough, he told Kaelin how he was so low on money that he might not be able to get his son a gift, let alone gifts.

Kaelin was deeply saddened by this. She could not stand the idea of the little boy waking up to an empty holiday. How can you teach someone to have empathy? Kaelin feels pain for suffering in the world. She wants to make it better.

She wants the child to be happy. She wants the child to have a present to unwrap. She wants to make a difference.

Nothing anyone can give me is more meaningful than to have a child who cares from the bottom of her heart and feels deeply.

Kaelin is a beautiful, deep, old, old soul who has a mission on life ...

I will remember this as the year that Kaelin "got" it!

Now, THAT is a beautiful gift.

On partying the season away ...


Oh boy. How do you turn a homebody into a party animal? Ok, forget the animal bit. How do you turn a homebody into a party person?

It is very hard to change but I am trying.

Not working too well. I much prefer the company of a few friends. More intimate. Not comfortable in the crowd of many. Particularly strangers.

I went out for dinner with some friends last night. Nice, cozy, easy.

Then I went onto the annual open house of a very dear friend of mine. I adore her - a soul sister from many lifetimes. She is such an amazing human being, so talented, so generous, so compassionate. I love her & really wanted to make the effort to show up.

I went. Lots of peeps, the house was overflowing with representation of all ages. The house was magnificent. Glorious. Linda has such an incredible sense of style. The garden was all illuminated, totally magnificent. Totally rivaled our local botanical gardens on Christmas display.

I really wanted to "belong" and luckily I saw a couple of my close friends.

For a few minutes, I felt safe, ok. They had to leave and there I was. Alone. Alone in the crowd.

Couples everywhere. Holding hands. Laughing. Hugging. Kissing.

I miss Vic so much. Who holds my hand? Who hugs me? Who kisses me?

It's two years and somehow, it is not getting easier.

I never, ever expected that Vic's passing would push me deep, deep underground.

I am still there, surfacing every so often but the world looks very formidable from my vantage view ...

Still giving it a good shot, even if I did slip away from Linda & Ron's fest quietly into the dark night ...